Streams

Chasing Miracles

Monday, February 08, 2010

When John Crowley and his wife Aileen learned that their two youngest children had a rare genetic disorder called Pompe disease, he left his corporate job to help co-found a start-up biotech company focused exclusively on developing a treatment for the disease. His book Chasing Miracles: The Crowley Family Journey of Love, Strength, Hope, and Joy tells the family’s story, which inspired the new film “Extraordinary Measures.”

Guests:

John Crowley

Comments [4]

Diana Quinn from Livingston,NJ

Please check this blog wownaturalwellness.blospot.com You may want to investigate this therapist's methods concerning Pompe Disease. She has a different approach that may be very helpful.

Mar. 10 2010 10:19 PM
Lesley Andrews

My acupuncturist may have some insights into Pompe disease. Please see this blog. http://www.wownaturalwellness.blogspot.com/

Can you share this with John Crowley? I am sure he gets so many of these types of communications, but it is worth investigating.

Feb. 09 2010 08:01 PM
ann

God bless your family.

Feb. 08 2010 01:13 PM
Mike C. from Tribeca

Hopefully, this interview will be more interesting and informative than the inane film, which among other errors (like making the children much older than they actually were) never mentioned the exorbitant cost of the treatment involved.

Feb. 08 2010 12:15 PM

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