The Leonard Lopate Show

HI I AM JEAN ANN I HAVE WILLIAMS SYNDROME !!! I THINK YOUR TALK SHOW WAS GRATE DR . POBER IS MY DR TOO SHE IS QUITE SPECAIL I LOVE HOW YOU DID YOUR SHOW ON WILLIAMS SYNDROME AS ONE OF THE OLDER LADIES WITH WS SHORT FOR WILLIAMS SYNDROME I QWOULD LIKE TO SAY THAT YOU DID US A WONDERFULL SERVICE BY DOING YOUR TALK SHOW I AM 58 YEARS OLD AND I AM THE OLDEST LADIE IN TEXAS!!!! THERE IS OBNE THING THAT HAS BOTHERED ME ALOT THE TV PEOPLE THINK WS IS ALL ABOUT MUSIC BUT IT IS ABOUT US AND OUR LIVES AND HOW WE LIVE THEM I CAN NOT SING BUT I SURE CAN TALK ABOUT WSAND HOW HARED MY LIFE WAS BEFOR I KNEW I HAD WS !!! THERE ARE SOO MANY DIFFERENT WAYS WE COULD TELL YOU ABOUT US AND OUR LIVES IT WOULD TAKE ALOT OF BOOKS TO READ ABOUT US !!!!BUT I THINK TALKING TO US IS MORE INPORANT !!! THANK YOU SOO MUCH FOR YOUR SHOW TALKING ABOUT WSIN A WONDERFULL WAY !!!! MISS JEAN ANN DIRKS

Thank you for doing this show on WS. I have a four year old daughter with WS. Your show was very informative.

Thank you,

Noel Clayton

regional co-chair for the Williams syndrome Association of the Central Plains Region

Thank you so much for shows like the one you did on Williams Syndrome. My granddaughter has WS and she is an absolute angel. You have never had a hug like an "Abi Hug". She is a special in a lot of ways.

WS ROCKS !

Thank you for doing this show on Williams Syndrome. It is a very confusing, often misunderstood disorder, even if someone has heard about it. Thank you for getting the word out and information out there about our kids and some of their abilities. They are truly special kids.

Shelia

Thank you so much for your program on Williams Syndrome. I have a 3 1/2 yr old granddaughter with WS. Her smile is so bright and beautiful. It truly lights up a room. I really appreciated the interviews of the young adults on your program. It is encouraging to hear that they are doing well, with all the obstacles they must face. Thank you again for helping to spread the word about Williams.

This program was definitely helpful in understanding more about Williams. I am a grandfather to a grandson who has Williams and since it was discovered he has come a long way. He is one amazing young man and i am very proud of him and his mother who has dedicated her life to lead him through the path of life. Dr. Prober must be commended on her tremendous succcess in her constant accomplishments in this area. G-d bless and thank you for your dedication.

My son Ryan has WS. He is 12 yrs. Dr. Prober helped us alot. She is one special person.

Dr. Prober Thank You for all you do for the WS

children.

it was a great pleaser to hear more about ws my son is 16 months and has ws it's hard for him to do much of any thing now b/c of him being behind but to hear other speak of the great happiness of having ws make me proud to have a son with ws it gives all whole family hope and joy and too know that ppl r aware of it until now i have never heard the media have more info on the subject thank you sooo much!!!!

My grandson, Noah, has Williams Syndrome. He is our angel and we have learned so much from him. He is bright, personable and loves anything involving music. He loves clocks and is an avid collector. He is 7 years old. Despite enduring multiple surgeries starting at three months old, he is thriving thanks to his devoted parents. His mom is a nurse and this has been a tremendous plus for Noah's health and development. She is a tireless advocate on his behalf in regard to his education and his health.

Just listened to your show and Barbara Pober, who diagnosed our 42-year old daughter, Heather, with Williams syndrome in October 2005, 3 months before she was diagnosed with Stage III ovarian cancer. Thanks to Barbara who discussed anesthesia and potential risks with the doctors treating Heather, and other amazing doctors, Heather survived her operation and 6 months of chemo and is in remission 1 year later. Now, Barbara is reviewing Heather's journal about her experience, which we are trying to publish. Williams people are lucky to have an advocate like Barbara.

It was nice to hear more info about ws. It would be nice if you can print more info in baby talk magazine, i have a son with ws he's 31 month old. He does loves music he doesn't walk by him self yet. I love him he's adorible baby.

I have a 34 year old daughter with WS. She is small of stature 4'10" and weighs around 80lbs. She has developed psychiatric problems in the past 10 years. Anyone with additional information appreciated.

my 13 year old has williams. we do not know anybody else with williams.i have lots of questions.we dont have the funds to come to your convention evey other year..mybe there is somrone in our area.

I am a 42 year old women with Williams Syndrome and I really do appreciate the fact that you have done a program on us. Hopefully, this will allow more people who might have this get diagnosed.

A Job Well Done!

My daughter Victoria was diagnosed with WS when she was 7 months old. We have been blessed to have such a beautiful and happy baby. We were blessed again today on Christmas Eve when she took her first steps on her own. She's almost 18 months so seeing her walk so soon was exciting. Thank you WNYC for spreading the word on WS. Looking forward to meeting others with WS in Anaheim, CA.

My 4 year old son Daniel has ws. He was diagnosed when he was 3yrs. old. We have beeen

blessed with an angel full of life and joy. Daniel recently started specail education; and is doing really well. It has been an overwhelming year for us. We are donig our best to fullfill his life with love and understanding. He turns evey tear into smiles. We love him!!!!!!!!!

Thank you for spredading the news about william syydrome. i hope more people know about us.

Thank you so much for the show. I think more people need to know and learn about WS. I 2 yr old son was diagnosed at 15 months. He is doing great and is a very lovable boy.

We have a WS clinic in Louisville, so we are very lucky to have help. If anyone needs to talk, please e-mail me at dawn.hundley@insightbb.com

Thanks again for the show.

My granddaughter, Gracie Rose, was diagnosed with WS when she was 4 months old. We were very fortunate that my daughter, Gracie's mom, found Dr. Pober. With her help Gracie is doing great now. Thank you to Dr. Pober for taking Gracie as your patient. She is 13 months now and still has alot of problems with eating but she is growing and smiling.

I have a 6 yr old grandson named Brandon with WS. He was diagnosed at 4 weeks old. He is very special and loved by our whole family. He is amazing. When I visited his school, when walking down the hall,everyone knew him and spoke to him. His friendly personality is so contagious. Bless his heart, he has had several surgeries and is always so happy. My daughter and her husband are so dedicated in providing him the best care. We plan to attend the WS Conf in Anahiem this year.