On Demand
Rare Diseases
Today, as part of our Underreported series, we’re going to take a look at rare diseases. Ever heard of a LAM? Most people haven't. Lymphangioleiomyomatosis (LAM) is a rare lung disease in which an unusual type of muscle cell grows in the tissue of the lungs, and eventually blocks the airways, and blood and lymph vessels. The disease most often strikes women of childbearing age, and is often misdiagnosed. We’ll talk to Abbey Meyers, the founder and president of NORD, The National Organization for Rare Disorders, and Amy Farber. Amy was diagnosed with LAM this past April.
» Read a letter from Amy [PDF]
» LAM Treatment Alliance
» Boston LAM/TSC Seminar Series
» National Organization for Rare Diseases
» NIH Office of Rare Diseases
» Contact Amy Farber
» Underreported series
Music:
Erin Brokovich Soundtrack; Track 1: “Useless” and track 3: “Pro Bono” - Composed by Thomas Newman
- About This Program »
- Staff Bios »
- Contact Us »
- Guest Hosts »
- Guest Picks »
- Latest Show »
- Tapes & Transcripts »
- Show Archive »
Features & Series
Podcast
Stay up to date.
Subscribe to the Podcast
Shop at Amazon!
Leonard Lopate Show picks
Start your Amazon shopping on WNYC.org and a portion of your total purchase goes to WNYC.
More
Leave a Comment
Please stay on topic, be civil, and be brief.
Back to EpisodeEmail addresses are never displayed, but they are required to confirm your comments. Names are displayed with all comments. WNYC reserves the right to edit any comments posted on this site. Please read the WNYC.org Comment Guidelines before posting.